This community was spawned over on migraines. It was willow_diamond's brain child, but I kidnapped it and went all the way with the idea. This community is meant to be used in addition tomigraines. However, in daily_migraine we're going to concentrate more on the management of pain, adjustments in lifestyle, etc. that comes from having migraines (or chronic headaches) for long periods of time. By long periods of time, we do not mean a couple of days. We're talking months if not usually years.
daily_migraine is here for both sufferers and family and friends of sufferers. If you have questions, feel free to ask us, but be willing to accept whatever answers you get.
I'm in my 20s. I was diagnosed retroactively to having migraines since 1st grade, but we suspect that it's actually been since birth. I've had a single migraine (Status Migrainosus) since 09/03/01. I have my good days, when I can function, and bad days or months when I can't get off the couch. I have a tentative diagnosis of Basilar-Type Migraine although now that I've been diagnosed with Vasogagal Syncope I'm less sure.
I'm willing to help pretty much anybody who comes across us, but if your migraines or headaches are more sporadic, I recommend migraines be your primary source of support. They're great over there.
If you need to get in touch with me, I'm on-line every day that I'm awake, but leaving a comment here will get my attention if I miss something.
There are a few rules that I'm going to set in place:
1: No bashing of self or others; this doesn't mean that you can't rant about people who don't get it, or say you hate the pain, but please, don't hate yourself. Pain is a horrendous thing to have to live with, but there are ways of living. We're all here to help each other find those ways and reasons.
2: Talk to your neurologist or GP; We here on daily_migraine are not doctors, and while we have personal experience, that's no match for a certified doctor examining you and giving you their professional opinion.
3: Think of others; Please try to avoid flashing icons or graphics. Although they may not be triggering for you such images might make somebody's day worse.
4: Be nice; do I need to explain this? We deal with enough in our lives without others putting us down or calling us weak. If you're not nice or are reported for something else, I'll give you a warning. 3 warnings, and you're out.
Here at daily_migraine there is an option of tagging your entries with a pain level. There are three options available:
First is the standard 1-10 scale. for this simply put 7/10 or the like
Next is the MHNI 1-5 scale. The criteria for this scale are as such: 0: no pain at all 1: a little pain if you focus on it 2: you can sometimes ignore the pain 3: the pain is always there 4: you can only perform simple tasks 5: you can't function
for use of this scale simply tag it 3/5 or the like.
Lastly is a combination of the first two, the Mankowski 1-10 Pain Scale. It works as such: 0: Pain Free. No medication needed. 1: Very minor annoyance - occasional minor twinges. No medication needed. 2: Minor annoyance - occasional strong twinges. No medication needed. 3: Annoying enough to be distracting. Mild painkillers are effective. (Aspirin, Ibuprofen.) 4: Can be ignored if you are really involved in your work, but still distracting. Mild painkillers relieve pain for 3-4 hours. 5: Can't be ignored for more than 30 minutes. Mild painkillers reduce pain for 3-4 hours. 6: Can't be ignored for any length of time, but you can still go to work and participate in social activities. Stronger painkillers (Codeine, Vicodin) reduce pain for 3-4 hours. 7: Makes it difficult to concentrate, interferes with sleep You can still function with effort. Stronger painkillers are only partially effective. Strongest painkillers relieve pain (Oxycontin, Morphine) 8: Physical activity severely limited. You can read and converse with effort. Nausea and dizziness set in as factors of pain. Stronger painkillers are minimally effective. Strongest painkillers reduce pain for 3-4 hours. 9: Unable to speak. Crying out or moaning uncontrollably - near delirium. Strongest painkillers are only partially effective. 10: Unconscious. Pain makes you pass out. Strongest painkillers are only partially effective.
For use of this pain scale please tag it "7/10, Mankowski pain scale"
I recommend that you make an intro post when you first join us. It'll allow us to get a snapshot of your pain and how long it's been going on, a little about you, etc. If you feel comfortable with it, a med list wouldn't be out of place, but it's not required.