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Frequently changing auras

Hi everyone. I know I always come in here with crazy questions.

So first the good news. After nearly two years of only my family thinking I was having seizures, I found a neurologist who is willing to try me on seizure medication without EEG results to back him up. You have no idea how much of a relief it is. They have nearly all gone away now.

Now the quirky question. How many of you have had your auras change over the years, if you have them of course?

My aura is never the same from one migraine to the next, and don't even mention migraine cycles. Granted that my list of potential auras is longer than my list of medications. I don't even know if all of these things are really part of my migraines.

I know that my kind of migraine, (chronic complex with aura) is lacking in research. I know that I'm barely under control. I just don't know what's normal.

Last week I started getting these horrendous dizzy moments. I don't even know how to explain to doctors the difference between this and my usual vertigo. They both unbalance me, they both make me feel like I'm constantly moving. But this new one is so violent and so sudden that I almost fall when it happens, even if I'm sitting down. I'm incapacitated until it goes away. With vertigo I can eventually learn to compensate, even if I have to walk very slowly.

It just bothers me that I never can keep the same symptoms and that new ones keep popping up. I feel so grateful when a doctor doesn't send me home claiming it's all in my head, that I don't want to break it with my crazy fears and questions.

Anyway, if anyone else does this I'd love to hear from you, or even talk.

Thanks, Maria

PS I just realized I might have asked this before so be patient. Memory loss is evil.


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Dec. 12th, 2010 05:32 pm (UTC)
For roughly 25 years my symptoms were the same w every migraine. The last few years I get new symptoms all the time, it seems, and am usually experiencing migraine symptoms even when I don't have the pain from a migraine. They're weird diseases, it's no wonder no one's been able to figure out how to cure them.
Dec. 13th, 2010 05:42 pm (UTC)
Since anti-convuksnts (seizure medicine) is used fairly frequently for migraine prophylaxis, I'm not sure why it was difficult to get something prescribed even if the docs didn't believe you have seizures. I take neurontin and in the past took topamax, both are anti-convulsants also used for epilepsy.
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